Today has been a hard day. Last night Capri spiked a fever as i was leaving. This morning i found out she has 2 different kinds of bacteria growing in her blood stream. We took the picc line out and after 5 different attempts from 1 IV specialist and 2 doctors we finally got a new line in capris foot. Because of this bateria she will need to be on IV antiobiotics for 2 weeks. If insurance denys our second request we made today for a life flight home we will be stuck in minnesota till mid March. I am beginning to feel like we are never going to come home. Everyday it gets harder to be away from my husband and my other 2 kids. Im pretty sure they think grandma and grandpa are their new parents. I am trying to be positive and i know we are in the best place to have a sick baby but come on! 2 blood clots 2 lungs collapses 2 bacterial blood infections a chylus leak 2 major heart surgeries 3 failed attempts at extubation... when is it our turn to catch a break? Baby girl i know you like the attention but its okay to let the other kids get some of the bugs once in awhile.. just stay healthy~
Hopefully we will hear from insurance tomorrow and at least have a plan on moving forward. Something to look forward too. On a positive note our friend Grant was discharged today. That little boy is a champ showing all of us up. Nathan is still stable and will hopefully attempt extubation tomorrow. He has a long road ahead of him as well. If nothing else we will have company in our misery :)
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