Friday, January 24, 2014
How long will we be here?
Slowly her color came back and her numbers leveled out into the 90s. Both of her lungs have collapsed again. Hopefully the CPAP will push enough air into her lungs to inflate them and we will be able to get her to cough and get rid of the fluid that is on them.
The rest of the day was quiet. I couldn't hold her because she was so unstable. So i held her hand and showed her pictures and videos of A and B. Right before i left Dr. Dearani came in the room to check on miss Capri. He looked at her chest tube to decide if we could take it out this weekend. Unfortunatly he decided that she was knicked during surgery and is now leaking fat from her lymphatic system into her chest. On monday they will put her on a no fat formula via her feeding tube and will need to spend the next few weeks being closely monitored to hopefully avoid another surgery. We have no idea of when we will be able to leave Minnesota but our goal is to be home by Feb 9th because it will be As first birthday.
I am so grateful for all of the wonderful people in my life who have been calling, texting and sending packages to make this stay easier. Please don't be offended if I don't answer the phone, its hard to answer the phone and hear the person on the other line be sad. I don't want to make other people sad, and sometimes talking just makes me even more sad. Texting is easier, its less emotional. It doesn't mean i don't appreciate you though. I do. i really really do.