Baylee spent most of the night awake with an aweful cough. Wednesday morning I decided to take her into an Insta care to make sure that she didn't have RSV. As we walked into the doctors office A and B ran over to the kids area to play while Capri and I waited to sign us in. I heard her cough and looked down just in time to see projectile vomit flying out of her carseat. I sat her down to see if she was ok and she was blue. I cleaned out her mouth and turned up her oxygen to see if that would help. Her skin was grey and her lips were a deep blue. Our pediatricians nurse walked by and asked if she was okay. She peeked at Capri, said "oh my god" and ran back to get the dr. At the same time 2 nurses came running out from the insta care side and hooked her up to monitors. After casuing quite the scene we were told to get to primarys as quickly as possible
The ride there A was my little doctor. Every few seconds he would update me on her color letting me know she was still blue. He would tell me her eyes were opening a little but she was mostly just laying there. We got to the ER and were greeted by a room full of doctors. after assessing her they confirmed she was in SVT and that we needed to start doing vagal maneuvers. We started by holding her upside down, nothing. Then we gagged her with a binky and tried to stimulate her rectally. Still nothing. Now it was time to use the ice. I told them I didn't want to watch so I stepped out of the room while they placed an ice bag on her face to suffocate her. It is the worst thing in the entire world. I hate that we have to do that. And it still didn't work. Nothing was getting her out of SVT.
They brought in some medicine to stop her heart and re set it. first dose, nothing. second dose, nothing. they placed the shock pads on her and brought in a doctor to sedate her. They decided to try the ice one more time just incase and it worked. After 4 and 1/2 hours she was finally out of SVT.
An hour later she was back in it. We haven't had these issues in over a month. what is going on? why is she struggling?? The ice kicked her back out of it but sent us down to the Cardiac ICU. She had 2 more episodes through out the night and was sent up to the childrens surgical unit Thursday afternoon. She did great and by Friday afternoon we had our new meds in the pharmacy and were getting ready to be discharged. Then she went back into it. Nothing worked. They iced her 8 times! It was horrible. Everytime her poor tiny arms and legs would fly into the air squirming to get away. they stopped her heart twice with medications but nothing worked. We rushed her down to CICU placed the shock pads on her chest and had a room full of doctors. They doubled the adenosine dosage and tried the meds one more time. It kicked her out of it and she was okay. Her heart slowed down and her oxygen went back up.
It is now Sunday afternoon and we just moved back to the CSU. They changed her meds again and we have hopefully found one that will work. Being at the hospital is exhausting mentally and physically. It is so hard to be away from our other children and to be so helpless for capri. That being said I am SOO greatful for this hospital. There are so many amazing people who volunteer there time here to make meals for parents so we don't have to pay for food. People who are singing carols in the lobby, and people who just come by to visit. I am so glad that we live so close to a hospital that can help our baby girl.